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OBJECTIVE: To determine characteristics and pregnancy outcomes in women with primary adrenal insufficiency (PAI). DESIGN: Retrospective multicentre cohort study. SETTING: Twenty-three maternity units in the UK and Ireland. SAMPLE: Seventy-nine women with PAI who had 101 pregnancies. METHOD: Retrospective chart analysis. MAIN OUTCOME MEASURES: Adrenal crisis, pregnancy outcomes. RESULTS: We obtained data on 101 pregnancies in 79 women with PAI. Most (51, 64.1%) had autoimmune disease, 8 (10.3%) had prior adrenal infarction/surgery/haemorrhage, 2 (2.6%) had congenital adrenal hyperplasia, and 18 (21.3%) were unclassified. 19 (24%) women experienced a crisis during pregnancy (18.8% of pregnancies). One woman died postpartum. Although all women had recorded endocrinology input during pregnancy, steroid emergency cards were only reportedly carried in 40 (39.6%) pregnancies and 9/19 (47.4%) of those with an adrenal crisis in pregnancy. Compared with the pre-pregnancy dose, only 41% of women received an increased hydrocortisone dose in pregnancy. The caesarean section rate was higher than the UK average: 62/97 (63.9%). The preterm birth rate was 21.2% (21/99) and 12.8% (12/94) of neonates had a birthweight

Original publication

DOI

10.1111/1471-0528.18143

Type

Journal

BJOG

Publication Date

30/03/2025

Keywords

adrenal crisis, pregnancy, primary adrenal insufficiency