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This paper provides an overview of the nutritional management and care of people living with motor neurone disease (MND) in a specialist nutrition clinic. A specialist pathway of care has been developed to enable people living with MND to undergo a percutaneous endoscopic gastrostomy (PEG) procedure in a safe way; the pathway incorporates attendance at a dedicated nutrition clinic, a stratification tool to identify patients with a high periprocedural risk and a PEG insertion team with significant experience in the MND population. Since this pathway has been in place, gastrostomies have been successfully placed in patients with a forced vital capacity (FVC) of less than 50%; previously, this would not have been possible.

Type

Journal article

Journal

British journal of community nursing

Publication Date

07/2016

Volume

21

Pages

360 - 363

Addresses

Motor Neurone Disease Advanced Nurse Practitioner and Care Centre Coordinator.

Keywords

Humans, Motor Neuron Disease, Vital Capacity, Nutritional Support, Ambulatory Care, Gastrostomy, Patient Care Team, Patient Acceptance of Health Care